Advocacy group for rare eye disease sufferers to work with Caribbean Ophthalmology Research Alliance
One week after it was launched, members of “Keratoconus Barbados“, (KCB) are actively seeking to form linkages with other established organisations in Barbados with common goals. Keratoconus Barbados, is a support and advocacy group for persons suffering with the rare eye condition keratoconus.
With one of its main objectives being research into the rare eye disease keratoconus, the possible synergy between the group of patient advocates and the research alliance will be explored as a priority.
The founder of Keratoconus Barbados Roseanne Myers says “We reached out to the alliance, when we saw the fundraiser being promoted, and have pledged to work with CORA to explore how we can better understand the incidence of Keratoconus in Barbados and the causative factors“.
She added that after discussion with Dr. Kim Jebodhsingh, it was very clear that a collaboration on KC research between the medical professionals and patient advocates, is being embraced. CORA has given Mrs. Myers the opportunity to say a few words, at this unique social event, about the patient advocate group, “Keratoconus Barbados“.